MacART at the International Society for Autism Research (INSAR) Annual Meeting - 2023

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of autism but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on autism at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, autism experts from these organizations are coming together to integrate autism research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in autism and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of Autistic individuals, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about autism supports/service funding. Along with the wide-ranging expertise of its many autism experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of autism diagnosis, services, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

The International Society for Autism Research (INSAR) recently gathered in Stockholm, Sweden for the 2023 meeting. From May 3rd – 6th, scientists, researchers, clinicians, policy-makers, and self-advocates came together to share and learn about the latest scientific developments in autism research. This event – which included over 2,100 abstract submissions across 22 topic areas with authors from over 50 countries – exemplifies the international importance of advancement in autism care.

MacART was once again well represented at the 2023 INSAR meeting, giving members an excellent opportunity to share our research findings, exchange ideas and collaborate with other members of the global autism community. This year MacART members contributed to 26 posters, 2 oral presentations, and 2 panel sessions.

The following presentations include those with MacART members as contributors (links to abstracts will be added once available):

 

POSTER PRESENTATIONS:

  • A Scoping Review of Evidence-Based Supports on College and University Campuses for Autistic Post-Secondary Students
    • Including B. Di Rezze
  • Evaluation of a Province-Wide ASD Family Service Navigation Program
    • Including I. O'Connor, J. E. Tarride, & S. Georgiades
  • Altered Signal Complexity in Children and Adolescents with ASD
    • Including J. Frei
  • A Preliminary Investigation of E-I Balance As a Potential Marker of Adaptive Functioning in ASD
    • Including J. Frei
  • Investigating Differences in Resting State Functional Connectivity across Sensory Phenotypes in Autism
    • Including S. Georgiades
  • Dataset-Specific Developmental Trajectories of Brain Structure and Function in Neurodevelopmental Conditions: Implications for Replicability
    • Including S. Georgiades
  • Frequency-Specific Differences in Rich-Club Organization in Neurodevelopmental Conditions
    • Including S. Georgiades
  • Linkage of Whole Genome Sequencing and Administrative Health Data in Autism: A Proof of Concept Study
    • Including S. Georgiades
  • Sex Differences in Predictors of Mental Health Symptoms Level and Growth across Childhood in Autism
    • Including E. Duku, T. Bennett, & S. Georgiades
  • Testing the Stability of Co-Occurring Mental Health Difficulties in a Longitudinal Cohort Study of Autistic Youth
    • Including E. Duku, S. Georgiades, P. Szatmari, & T. Bennett
  • Correlates and Turning Points of Adaptive Functioning Trajectories and Longitudinal Associations with Autism Symptoms from Early Childhood to Adolescence
    • Including Y. J. Chen, E. Duku, P. Szatmari, & T. Bennett
  • Investigation of Shifts in the Phenotypic Measures and Sociodemographics of Autism Spectrum Disorders
    • Including S. Georgiades
  • Daily Activity Participation across Settings in Autistic Youth: Individual Variability and Temporal Stability
    • Including Y. J. Chen, E. Duku, P. Szatmari, T. Bennett, & S. Georgiades
  • Promoting Meaningful Collaboration between Autism Researchers and the Autistic Community: An Example from the Campus Belonging Network
    • Including B. Di Rezze
  • Ready2Work: A User-Informed Employment Website for Autistic Job Seekers
    • Including B. Di Rezze
  • Anxiety Symptoms in Autistic Children and Adolescents: A Network Perspective
    • Including T. Bennett, E. Duku, S. Georgiades, & P. Szatmari
  • Exploring the Association between Social Skills and Social Communication Impairments and Depression in Youth with Autism Spectrum Disorder
    • Including S. Georgiades
  • Efficacy of the First Years Inventory (FYIv3.1) Infant Screener in Predicting Autism Risk Status at 3 Years of Age
    • Including Y. J. Chen
  • Trajectories of Attention Problems in Children with ASD
    • Including P. Szatmari, T. Bennett, E. Duku, & S. Georgiades
  • The Validity of the Narrative Scoring Scheme in School-Aged Children on the Autism Spectrum
    • Including T. Bennett, E. Duku, S. Georgiades, & P. Szatmari
  • Participation in Standardized Academic Assessments and Academic Achievement of Children with Autism and Neurodevelopmental Disorders in Ontario, Canada
    • Including M. Janus, R. Jezrawi
  • Using Endocrine Profile to Identify Subgroups Among Transdiagnostic Neurodivergent Children and Adolescents
    • Including J. A. Foster, P. Szatmari, & S. Georgiades
  • Benefits of an Online Small Group Cognitive Behaviour Therapy Program for Autistic Children during the Pandemic: Evidence from a Community-Based Implementation Study
    • Including V. Lee
  • Screening for Mental Health Concerns Related to COVID-19 Stressors in Caregivers of Autistic Children Using the CoFaSS
    • Including V. Lee
  • Parent Outcomes Following Cognitive Behaviour Therapy for Autistic Children in a Community Setting
    • Including V. Lee
  • Well-Being Among Autistic and Non-Autistic People with Intellectual Disability during the COVID-19 Pandemic
    • Including V. Lee

 

 

ORAL PRESENTATIONS:

  • Examining the Replicability of Brain Structure Similarly Networks across Data from the Province of Ontario Neurodevelopmental Disorders Network (POND) and the Healthy Brain Network (HBN)
    • Including S. Georgiades
  • Linking Mouse and Human Brains to Identify Biologically Significant Clusters in Autism Spectrum Disorder
    • Including S. Georgiades

 

 

PANEL PRESENTATIONS:

  • A Randomized Placebo-Controlled Trial of Arbaclofen Vs. Placebo in the Treatment of Children and Adolescents with ASD. The “Arba Study”
    • Including J. Frei
  • The Developmental Impacts of Sensory Features on School-Age Functional Outcomes in Autistic and Non-Autistic Children
    • Including Y. J. Chen

 

Yun-Ju (Claire) Chen presenting her panel presentation titled, "The Developmental Impacts of Sensory Features on School-Age Functional Outcomes in Autistic and Non-Autistic Children".

Dr. Yun-Ju Claire Chen at a podium, presenting a slide about the North Carolina Child Development Survey, a prospective birth cohort study.