In the News

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of ASD but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on Autism Spectrum Disorder (ASD) at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, ASD experts from these organizations are coming together to integrate ASD research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in ASD and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of individuals with ASD, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about ASD treatment funding.  Along with the wide-ranging expertise of its many ASD experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of ASD diagnosis, treatment, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

The measure of a life – the Pathways Study

When ideas for a new study were being proposed, MacART member Dr. Peter Szatmari said that, “I thought it would be a study on what’s the most effective form of early intervention, or what’s the best treatment.” Instead, the most frequently posed question was “what determines how well a person with autism will function in life?”

To address this issue, Szatmari and his team launched the Pathways in Autism Spectrum Disorders study with the goal of describing changes in children’s skills, abilities, and ASD symptoms over time.  The study was also designed to find out what factors, like intelligence, language skills, or gender, influence how each child grows and develops.

Excerpted from The measure of a life by Nicholette Zeliad, Spectrum. https://spectrumnews.org/features/deep-dive/the-measure-of-a-life/

Mac researcher helping create national autism strategy

Dr. Stelios Georgiades, MacART co-director, is one of 11 autism experts chosen to be a part of the Autism Spectrum Disorder Working Group, chaired by Health Minister Rona Ambrose. "It shows that the time is right to work collaboratively, at a national level, to make sure these families receive the supports they need irrespective of where they live," said Georgiades. "Consultations will address important topics such as information sharing and research, early detection, diagnosis and treatment, and ways to support Canadian families affected by ASD across the lifespan."

Excerpted from Joanna Frketich, Hamilton Spectator. http://www.thespec.com/news-story/5728678-mac-researcher-helping-create-national-autism-strategy/

Specialized programs can help autistic kids thrive, study says

Dr. Stelios Georgiades, MacART co-director, has had findings from Pathways in ASD, a major research study, published in the prestigious Journal of the American Medical Association.  The study showed that children with ASD differ in their skills and abilities and that one-size-fits-all treatments do not work for many of them.  Using a tailored approach to treatment would help improve each child’s functioning.

Excerpted from Dave Churchill, Hamilton Spectator. http://www.thespec.com/news-story/5289707-specialized-programs-can-help-autistic-kids-thrive-study-says/