Summer students - 2017

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of ASD but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on Autism Spectrum Disorder (ASD) at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, ASD experts from these organizations are coming together to integrate ASD research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in ASD and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of individuals with ASD, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about ASD treatment funding.  Along with the wide-ranging expertise of its many ASD experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of ASD diagnosis, treatment, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

This summer the McMaster Autism Research Team was pleased to host 3 summer students, each from different backgrounds, and provide them with experience in the world of research.  These bright and capable students showed great initiative and willingness to help with whatever tasks were thrown their way – we truly appreciate the help they provided us over the past few weeks! 

 

Sandra Lee 

Sandra Lee worked with us in 2015, as a recipient of a Hamilton Health Sciences Health Research Bursary Award for graduating high school students. At that time she worked on the Pathways in ASD study - a longitudinal study following up on children diagnosed with autism spectrum disorder. Sandra has since been accepted into the Bachelor of Health Sciences program at McMaster, and this year was the recipient of a BHSc Summer Research Scholarship. This scholarship program contributes funds for BHSc (Honours) students to pursue summer research opportunities at McMaster University with a faculty member. Her faculty research supervisor was MacART co-director Dr. Stelios Georgiades.

We were happy to have her back with us! This summer Sandra supported us on a wide range of tasks, including data checking and scanning for various studies, developing promotional materials, conducting literature reviews, questionnaire development and pilot testing, supporting the planning of our MacART research stakeholder symposium, and more. It was a very busy summer, particularly with preparing for the rollout of the Pediatric Autism Research Collaborative (PARC) Project, but Sandra took on the many tasks given to her with ease and aplomb!

 

 

 

 

 

 

 

 

Ahsas Nagee

MacART participated once again in the Hamilton Health Sciences Health Research Bursary Awards Program for graduating high school students, and this year we hosted Ahsas Nagee.  Ahsas is a graduate of the IB program at Michael Power/St. Joseph High School in Etobicoke. He will be attending the Medical Sciences program at Western University this fall, hoping to pursue a career in medicine and healthcare research.

During his time with MacART this summer, Ahsas has computerized patient surveys and conducted a literature review for the Pediatric Autism Research Collaborative (PARC) Project, which aims to build a standardized research protocol that caters to the needs of families dealing with autism.  Ahsas has also worked with the WHO’s International Classification of Functioning, Disability, and Health model to evaluate the measures used in the PARC Project. He has learned extensively about research not only in neurodevelopmental disorders, but the state of scientific research in general while also gaining invaluable skills in the field.  

 

 

 

 

 

 

 

 

 

 

Rukaiyah Lakkadghatwala

Rukaiyah Lakkadghatwala is a first-year medical student at Queen's School of Medicine, who has an interest in gender studies and the social determinants of health. She has a passion and considerable experience working with children (as a support worker for children and youth with intellectual disabilities, a tutor for children and youth at community shelters, a leader of a Girl Guide unit, and an Ontario Early Years Centre volunteer), and recognizes the many factors that impact wellness. She contacted the Offord Centre for Child Studies searching for volunteer experiences to strengthen her knowledge of the social determinants of health and was put in touch with our ASD team, who are interested in similar issues. 

This summer Rukaiyah has helped MacART with developing presentation materials, conducting literature reviews, drafting an evaluation plan, questionnaire development and pilot testing, supporting the planning of our MacART research stakeholder symposium, and more. Together with Ahsas, she is also using the WHO’s International Classification of Functioning, Disability, and Health model to evaluate the measures used in the PARC Project.  Rukaiyah was eager and willing to take on all the tasks given to her, and we appreciate her efforts to volunteer her time with us!