Senator Munson’s Visit to McMaster May 21, 2019

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of ASD but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on Autism Spectrum Disorder (ASD) at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, ASD experts from these organizations are coming together to integrate ASD research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in ASD and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of individuals with ASD, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about ASD treatment funding.  Along with the wide-ranging expertise of its many ASD experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of ASD diagnosis, treatment, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

May 21st was a memorable day for the McMaster Autism Research Team (MacART) and for McMaster University. We were honoured to co-host a visit from Senator Jim Munson, and his wife Ginette, to McMaster in partnership with the Socrates Project. Their visit began with presentations by members of MacART to inform the Senator and his wife about some of the ground-breaking and collaborative autism-related research happening at McMaster.

In the afternoon, various leaders, stakeholders, family members and self-advocates – numbering over 120 – from the autism community across southern Ontario gathered in the Great Hall of the McMaster University Faculty Club for a Socrates Project event with Senator Munson. MacART trainees Dr. Vivian Lee, Dr. Mackenzie Salt, and Dr. Stephen Gentles participated in a conversation with the Senator around why Canada needs a national autism strategy, what a strategy might include, and the feasibility of such a plan. This was followed by questions from the highly engaged audience.

Senator Munson is notable for his advocacy for autism and developmental disabilities. It was his leadership in Parliament that led to the adoption of An Act respecting World Autism Awareness Day and, later, the 2007 Senate Report, Pay Now or Pay Later: Autism Families in Crisis. Soon after, the Canadian Autism Spectrum Disorder Alliance (CASDA) was formed, which has worked to advance the idea and outlines for a National Autism Strategy, the topic for the afternoon’s conversation. This past spring CASDA released its Blueprint for a National ASD Strategy, which provides a path for concrete federal action—relevant for all political parties given the federal election this fall. As the Senator said, “Autism is not just a provincial responsibility or a federal responsibility. It is a Canadian responsibility. We have to give hope to everybody. We have to give a place for everybody to participate.”

Senator Munson and MacART trainees speaking at the Socrates Project event.

Senator Munson and MacART trainees speaking at the Socrates Project event.