In the News

Autism Care

Research
Education
Community
Policy

Research

“Future research needs to focus not only on the biological markers of ASD but also include data about functioning, participation, and environmental barriers and facilitators.”

Dr. Olaf Kraus de Camargo  //  Developmental Pediatrician

 

MacART is laying the foundation for creating a systematic way of linking scientific research on Autism Spectrum Disorder (ASD) at McMaster University to clinical practice at McMaster Children’s Hospital.

The physical proximity of McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University has a number of characteristics that provides the rare opportunity for collaborative research. Taking advantage of existing university and clinical infrastructure and cross-appointments for clinicians at the university, ASD experts from these organizations are coming together to integrate ASD research into clinical practice.

The focus of MacART members’ research is in the areas of basic science, clinical practice, clinical research, epidemiology and statistical modelling, knowledge translation and exchange, and social science research. By promoting the collaboration of stakeholders across disciplines, MacART is reducing barriers to implementing research in clinical practice, with the goal of advancing autism care through meaningful research.

Learn more about our research HERE.

Education

MacART members are now supervising more than 50 research trainees at the undergraduate, graduate, and postgraduate levels, and are engaged in the mentoring of junior and intermediate faculty members.

In the future, we intend to establish research and clinical training programs for students in McMaster’s undergraduate medical, health sciences, and psychology programs, and for residents and fellows in Pediatrics and Psychiatry.

By training and mentoring emerging researchers and practitioners, we will help to solidify their understanding of and commitment to using basic science to inform their clinical practice, and to use their clinical experience to help formulate research questions. It is our belief that involving these learners in MacART educational activities will promote their use of practices that advance autism care through meaningful research.

Community

“Our scientists are working collaboratively with local clinicians to generate the evidence needed to improve autism services. This symposium is a great example of McMaster’s community engagement efforts.”

Dr. Patrick Deane // President & Vice-Chancellor // McMaster University

 

The community engagement component of MacART strives to work with stakeholders and involve them as partners in every step of the research process.  By doing so, the questions that drive research begin to change. They become more meaningful because they address the real day-to-day challenges faced by children and their families, and the clinicians supporting them.

MacART aims to increase participation and involvement of members of the McMaster and Hamilton communities in the research process. With community members driving the research, new and relevant knowledge can be produced to bridge the research-to-practice gap in ASD and advance autism care through meaningful research.

Policy

“People whose lives are connected to the challenge of autism can share knowledge – from clinicians to educators to parents – and what an amazing opportunity that is. We have a real opportunity to translate challenges into research, and research into practice that will help families living with autism.”

Rob MacIsaac  //  President & CEO // Hamilton Health Sciences

 

Policies should be created using the best available evidence that make positive impacts on the lives of individuals with ASD, along with their families.

MacART’s founder, Stelios Georgiades, serves on both federal and provincial advisory committees about ASD treatment funding.  Along with the wide-ranging expertise of its many ASD experts, MacART is set to act as a highly credible source of evidence-based information to influence and inform public policy about the provision and funding of ASD diagnosis, treatment, and family supports.

MacART will continue to find ways to collaborate with policymakers to both learn more about the policymaking process, and to contribute our expertise and knowledge to inform policymaking, in order to advance autism care through meaningful research.

Statement from MacART on World Autism Awareness Day 2021

April 2nd is World Autism Awareness Day – a day to continue raising awareness of Autism Spectrum Disorder and to promote acceptance and inclusion for the 70 million individuals living with Autism Spectrum Disorder around the globe. In Canada, 1 in 66 children are diagnosed with Autism, highlighting the importance of creating a more inclusive world for our next generation.

The McMaster Autism Research Team (MacART; www.macautism.ca) is excited to celebrate World Autism Awareness Day. MacART is a partnership between McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University that aims to bridge the research-to-practice gap in Autism. MacART is designed to foster collaboration among the families, researchers, clinicians, educators, and policymakers whose lives and work are touched by Autism.

The COVID-19 pandemic has disrupted everyone’s lives in different ways, including having serious consequences for employment. It can be difficult for people with Autism to find regular, supportive employment, and these challenges are likely exacerbated by the pandemic. With the theme of this year’s World Autism Awareness Day focusing on the importance of workplace inclusivity and inclusive employment programmes, particularly in light of the pandemic, we want to recognize the MacART members who are contributing to such research efforts. Research led by MacART trainee Irene O’Connor and supported by MacART members Drs. Briano Di Rezze and Geoff Hall, and their teams, are building evidence on the importance of specialized support roles, such as job coaches; their work has outlined key characteristics that job coaches provide in supporting youth and adults with Autism in the workplace.

“This pandemic has challenged us to keep progressing our Autism research in ways that adapt to our new environment,” says Dr. Di Rezze, Associate Professor in McMaster University’s School of Rehabilitation Science, whose research focuses on examining the impact of interventions on participation in everyday life –  including employment. “Keeping our research focus on employment and Autism has been important because finding and maintaining jobs in this pandemic has been especially challenging for people with Autism and other neurodevelopmental disabilities.”

MacART is continually forming and strengthening collaborations with our partners to help build frameworks that can better support families and promote an inclusive world for those on the spectrum. These efforts build toward our goal of advancing Autism care through meaningful research.

 

MacART is proud to be supported by our partners:

  • McMaster Children’s Hospital & McMaster Children's Hospital Research Collaborative
  • Hamilton Health Sciences & Hamilton Health Sciences Foundation
  • McMaster University

 

Click here to download a copy of this statement.

Announcing the launch of the Pediatric Autism Research Cohort (PARC) study

We are pleased to announce the launch of the multisite Pediatric Autism Research Cohort (PARC) study, which aims to examine the diverse and changing trajectories of children with autism and their families. Read more here.

MacART co-director named inaugural chairholder of new McMaster Children’s Hospital Chair in Autism and Neurodevelopment

We would like to send congratulations to MacART co-director, Dr. Stelios Georgiades, on being appointed as the inaugural chairholder of the new McMaster Children’s Hospital Chair in Autism and Neurodevelopment. 

This prestigious new position has been established through the support of Hamilton Health Sciences Foundation and the Department of Psychiatry and Behavioural Neurosciences at McMaster University, as well as with the support of our community collaborators – the Canadian Autism Spectrum Disorder Alliance, Autism Ontario, Autism Speaks Canada, and the Sinneave Family Foundation.

As Chair, Dr. Georgiades will continue and expand much of the work already underway including research into different facets of the course and presentation of Autism Spectrum Disorders (ASD), building partnerships and networks with community organizations who are working in this area, supporting individuals and their families living with ASD, and advocating at a provincial and national level for much needed changes that will benefit these populations.

“There are so many inequalities across Canada for children with autism and neurodevelopmental conditions, and what is available often depends on where you live and how much money you have to supplement public funds for intervention,” says Dr. Georgiades. “We are working collaboratively with families and stakeholders to change this, building regional, provincial, and national networks that integrate research, training, practice and policy.”

This is a well-deserved achievement for our colleague and an exciting opportunity for exponentially advancing autism research and collaboration!

An official statement can be found HERE

The announcement event was also recorded, and can be found here:

Supporting the Canadian Academy of Health Sciences’ Autism Assessment

The federal government has committed to work with provinces, territories, self-advocates, families and stakeholders toward the creation of a National Autism Strategy. The Canadian Academy of Health Sciences (CAHS) has been selected by the Public Health Agency of Canada to conduct an autism assessment that will inform the government ahead of the creation of this national strategy.  This process will involve significant engagement and participation from autistic individuals, families, stakeholders and key national, local and grassroots organizations to support consultation on a wide range of issues including economic inclusion (in particular employment and housing), social inclusion, and evidence-based intervention and therapies.

An Oversight Panel and three Working Groups have been developed to provide leadership for this assessment, and are made up of autistic adults, parents, clinicians, and researchers. The Oversight Panel’s work will be supported by the Working Groups that will focus on:

MacART Co-Director Stelios Georgiades has been named Vice Chair to the Evidence-Based Interventions Working Group, and is also an Oversight Panel member. Congratulations to Stelios on his appointment to the panel – we look forward to seeing the feedback gathered from this important work! 

 

Results from the Pandemic Canadian Autism Needs Assessment now available!

The McMaster Autism Research Team (MacART) is pleased to announce the release of results from the Pandemic Canadian Autism Needs Assessment. We were proud to partner with Autism Speaks Canada and the Canadian Autism Spectrum Disorder Alliance (CASDA) to develop, implement, and analyze the Pandemic Canadian Autism Needs Assessment – a survey where respondents shared their experiences to help inform on the impacts of the COVID-19 pandemic.

This was the first survey of the COVID-19 pandemic capturing the unique impact on the autism community in Canada. With over 1000 respondents taking part (21% on the spectrum), some key results show that: 

  • Over 75% of respondents reported feeling stressed, worried, and anxious

  • Over 50% of respondents said maintaining personal routines/children’s routines as well as keeping a healthy lifestyle (including sleep and exercise) were difficult

  • Respondents identified services and supports that they needed but were not receiving such as, recreational programing, financial supports, and access to health professionals.

 

We are grateful to participants for their input during these unprecedented times, and to our partners for this collaboration. The information shared by respondents will be used to inform organizations of what services and supports are most needed and helpful for autistic people and families during this time and to inform government of the need for increased supports for the autism community in response to the COVID-19 pandemic and future emergency situations.

 

To access the report results, please visit https://www.autismspeaks.ca/pandemicsurvey/ 

MacART at the Canadian Autism Leadership Summit 2020

On October 5th and 6th, 2020, the Canadian Autism Spectrum Disorders Alliance (CASDA) held its 6th Canadian Autism Leadership Summit. The Summit’s theme this year was “Connect. Inform. Act. Sustain.” – focusing on deepening the conversation on how to link policy, practice and data around the development of a National Autism Strategy.

MacART was once again well represented at the Summit, with our members sharing our research findings, exchanging ideas, and collaborating with other members of the national autism community. This year, MacART members contributed to 6 poster presentations and participated in 2 panels. Our Founder and Co-Director Stelios Georgiades led the summit’s Keynote presentation.

“Our McMaster team has answered the call by Canada’s autism community” says Dr. Georgiades. “Our experts are working on several initiatives related to the creation of a National Autism Strategy. The knowledge generated through our research projects is advancing the autism field. Our collaborative efforts with CASDA to connect research with policy and practice are now more important than ever. I am optimistic that we are on the right track toward a national strategy that will address the needs of all autistic Canadians.”

Our members took part in the following:

Keynote session, Day 1: Pathways in ASD Team  on “Developmental Pathways of Canadian Children on the Autism Spectrum”

  • This presentation provided an update on the "Pathways in ASD" study, the largest autism follow-up study in the world. The "Pathways in ASD" research team, led by MacART Co-Director Dr. Stelios Georgiades, discussed evidence on the individual, family, community, and services factors that influence the developmental pathways in autistic children/youth from across 5 Canadian provinces.

 

Poster Presentations:

  • The Family Check-Up: Engaging Families in Child Mental Health Prevention and CareDr. Teresa Bennett
  • Association Between Neighbourhood Socioeconomic Status and Development of Children with Autism Spectrum DisorderDr. Ayesha Siddiqua
    • A video recording of this presentation can be viewed here.
  • Peer Mentorship Programs for Youth with Autism Spectrum Disorder: A qualitative reviewLinda Nguyen
    • A video recording of this presentation can be viewed here.
  • Presenting the Results of Autism Speaks Canada COVID-19 Pandemic Needs Assessment SurveyDr. Mackenzie Salt and Peter Soliman
    • A video recording of this presentation can be viewed here.
  • Evaluation of Autism Ontario’s Service Navigation Program – Irene O’Connor, Dr. Jean-Eric Tarride & Dr. Stelios Georgiades
  • Clarifying the Word “Information” in Autism PolicyDr. Stephen Gentles
    • A video recording of this presentation can be viewed here.

 

Panel Discussions:

  • IGNITE Speakers Equity panel – Addressing Disparities in a National Autism Strategy: an Equity Lens – discussant Dr. Mackenzie Salt
  • Policy Group Consultations  – discussant Dr. Stephen Gentles

 

As CASDA continues to facilitate the work toward a National Autism Strategy, MacART is proud to support this important goal. From implementing our research studies, to supporting the development of policy briefs, to collaborating on projects with our community partners, the hope is that the evidence generated can be used to inform the creation of a strategy that will support Canada’s autism community in a meaningful way.

MacART members presenting at the Canadian Autism Leadership Summit 2020. From top left to right: Irene O’Connor, Jean-Eric Tarride, Stelios Georgiades, Terry Bennett, Mackenzie Salt. From bottom left to right: Ayesha Siddiqua, Eric Duku, Peter Szatmari, Linda Nguyen, Steve Gentles.

MacART members presenting at the Canadian Autism Leadership Summit 2020. From top left to right: Irene O’Connor,
Jean-Eric Tarride, Stelios Georgiades, Terry Bennett, Mackenzie Salt. From bottom left to right: Ayesha Siddiqua,
Eric Duku, Peter Szatmari, Linda Nguyen, Steve Gentles.

 

 

MacART leadership change

The McMaster Autism Research Team would like to announce a change in the makeup of our leadership team.  Dr. Caroline Roncadin, Clinical Director of the Autism Program at McMaster Children’s Hospital, will be succeeding Dr. Terry Bennett as the new Co-Director of MacART. 
 
“Terry has been with MacART since the beginning,” says MacART Founder and Co-Director Dr. Stelios Georgiades. “I would like to thank Terry for her work in helping us become the collaborative entity we are today. I am thrilled to have Caroline join me as MacART Co-Director and I look forward to working with her and the team to realize our vision of advancing autism care through meaningful research.”
 
“Taking on this new leadership role expands our ability to bridge the research-to-practice gap and translate the meaningful research we do into day to day practice with children, youth and families,” says Dr. Roncadin.
 
 

 

 
 
 
 
 
 
 
 
 
 
 
Dr. Caroline Roncadin,
Clinical Director of the Autism Program at McMaster Children’s Hospital
& new MacART Co-Director

MacART Member Recognitions

We are pleased to share the good news that some of our MacART members have recently received new funding and appointments.

MacART co-director Dr. Terry Bennett has been appointed as the Jack Laidlaw Chair in Patient Centred Health Care for a five-year term. This is the Chair previously held by Chuck Cunningham, which focuses on the well being of the patient and on research that will improve communication between health providers, patients and their families.  Dr. Bennett will focus on implementing, evaluating and scaling up ecological models of family-centered child mental healthcare.   

Dr. Briano Di Rezze is the recipient of New Investigator Funding from Hamilton Health Sciences. Dr. Di Rezze’s research is focused on developing measures to support clinical practice in rehabilitation research for patients with neurodevelopmental disabilities. This funding is supporting his development of a new tool describing levels of social communication abilities in children with autism, as well as his study of the challenges faced by young adults with disabilities when transitioning into adult roles. The next steps will be to expand these studies to the national level.

Dr. Magdalena Janus has received CIHR funding for her project "Missed opportunities for early intervention: Determinants of prevalence and characteristics of children with impairments unrecognized in health systems by kindergarten age among the 2009 birth cohort of Ontario children".  This project aims to examine why some children who are reported by their teachers as having health impairment or special health needs in kindergarten have not been flagged in the healthcare system prior to school entry. Dr. Janus is also part of groups that received CIHR funding for work to investigate cannabis use in pregnancy and neurodevelopmental outcomes in children. Dr. Eric Duku is also a co-investigator on both of these projects.

Congratulations to all!

Statement from MacART on World Autism Awareness Day 2020

April 2nd is World Autism Awareness Day – a day to recognize all those individuals around the world who live on the autism spectrum. Here in Canada, 1 in 66 children are currently diagnosed with autism spectrum disorder (ASD); globally, more than 70 million people live with autism.

Usually autism-friendly events and activities would be taking place throughout the month with the goal of increasing understanding of autism and inspiring everybody to be kinder and more inclusive. Unfortunately, this year things are going to be different. Due to the COVID-19 pandemic, most events are being postponed and cancelled and many people are doing their part to protect public health by staying home. This is a challenging time for everybody, but especially our families living with autism. With many schools and services closed, this can mean a change to routines and a loss of support. Our message this year is to keep the spirit of Word Autism Month alive and strive to provide kindness and support whenever possible.

The McMaster Autism Research Team (MacART) is a partnership between McMaster Children’s Hospital, Hamilton Health Sciences, and McMaster University that aims to bridge the research-to-practice gap in ASD. MacART is designed to foster collaboration among the families, researchers, clinicians, educators, and policymakers whose lives and work are touched by ASD.

Over the past year MacART has made exciting progress in moving forward policy at various levels. We have been involved in the push for a National Autism Strategy – which would not only facilitate the development and implementation of the large collaborations needed to advance our understanding of autism, but would help translate research evidence into improved policies and practices for those living with autism. At the provincial level, MacART’s Training & Education lead Dr. Mohammad Zubairi served as an expert member of the Ontario Autism Program (OAP) Advisory Panel. “The recommendations put out by OAP Advisory Panel reflect many important conversations and careful consideration of feedback from families and stakeholders representing different sectors,” says Dr. Zubairi.  “It lays out a framework that lends itself to a lot of creativity and collective problem-solving to ensure children and youth and their families get the best support that they need.”

In these difficult times it is critical to ensure families receive the support they need, and we hope that our work will have that sort of widespread impact. Some of our projects and collaborations will look a bit different than usual during this time of physical distancing, but our collaborative work towards advancing autism care through meaningful research will continue.

 

MacART is proud to be supported by our partners:

  • McMaster Children’s Hospital & McMaster Children's Hospital Research Collaborative
  • Hamilton Health Sciences & Hamilton Health Sciences Foundation
  • McMaster University

 

Click here to download a copy of this statement.

Research on parents’ perspectives navigating and becoming engaged in autism-related care

Dr. Stephen Gentles, a postdoctoral fellow with both MacART and Autism Ontario, researches the social psychological needs and responses of parents of children with autism as they navigate intervention. His recently-published paper, “Coming to understand the child has autism: A process illustrating parents’ evolving readiness for engaging in care” discusses parents’ perspectives navigating and becoming engaged in autism-related care — specifically at the early stage of coming to understand their child has autism.

Importantly, parents vary in their readiness for involvement in care! This academic article is available to read for free here. The article is also complemented by a blog – available here – that summarizes the research in a briefer and more accessible way.